Monday, April 24, 2006
Monday Update
No real medical news to report this week. I am still waiting to head into FCCC on the 1st for a port installation and some other tests. The trial is supposed to start on the 8th – I spoke to the trial coordinator this week and she tells me there is a chance this could be delayed, which I’m hoping is not the case.
We’ve had some outstanding spring weather as of late, which has helped keep things cheery around here. This week is National Turn Off the TV Week, which Jenny and I decided our family would participate in. We had the kids make a list of things they would like to do instead, so we’ll see how it goes. Jack lost his first tooth yesterday, so the tooth fairy paid him a visit last night.
For those of you concerned about gas prices this summer, I found a good site that depicts prices by county across the US on an interactive map. See the GasBuddy Website. This site also lets you find prices at individual stations in your area, which may save you some money.
I also wanted to mention an excellent Cancer resource. The National Comprehensive Cancer Network (NCCN) is an alliance of cancer centers and professionals that develops comprehensive guidelines for cancer care. The guidelines are called the “NCCN Clinical Practice Guidelines in Oncology” and define the recognized standard for cancer care for almost all types of cancer. There are separate guidelines for the various types and places of cancer – they generally take the form of decision trees that guide the doctor in determining the course of treatment. If you or someone you know is diagnosed with cancer, this a great place to start to begin to understand what your treatment options are, and start understanding the terminology and issues involved with cancer treatment. They are reviewed and updated yearly. You can download specific guidelines as pdf files at this site.
Also, a very big THANKS to all those families that continue to bring us meals at regular intervals. This is a huge help for our family and we are very appreciative of all those who are lending a hand.
We will be heading to my parents this Saturday to spend some time there before my appointment. We’re still not sure when we’ll be coming back. That’s all for now, please feel free to drop me a line at sethjenny@adelphia.net or seth.edmondson@gmail.com as I am not watching TV this week and have plenty of free time!
Seth
We’ve had some outstanding spring weather as of late, which has helped keep things cheery around here. This week is National Turn Off the TV Week, which Jenny and I decided our family would participate in. We had the kids make a list of things they would like to do instead, so we’ll see how it goes. Jack lost his first tooth yesterday, so the tooth fairy paid him a visit last night.
For those of you concerned about gas prices this summer, I found a good site that depicts prices by county across the US on an interactive map. See the GasBuddy Website. This site also lets you find prices at individual stations in your area, which may save you some money.
I also wanted to mention an excellent Cancer resource. The National Comprehensive Cancer Network (NCCN) is an alliance of cancer centers and professionals that develops comprehensive guidelines for cancer care. The guidelines are called the “NCCN Clinical Practice Guidelines in Oncology” and define the recognized standard for cancer care for almost all types of cancer. There are separate guidelines for the various types and places of cancer – they generally take the form of decision trees that guide the doctor in determining the course of treatment. If you or someone you know is diagnosed with cancer, this a great place to start to begin to understand what your treatment options are, and start understanding the terminology and issues involved with cancer treatment. They are reviewed and updated yearly. You can download specific guidelines as pdf files at this site.
Also, a very big THANKS to all those families that continue to bring us meals at regular intervals. This is a huge help for our family and we are very appreciative of all those who are lending a hand.
We will be heading to my parents this Saturday to spend some time there before my appointment. We’re still not sure when we’ll be coming back. That’s all for now, please feel free to drop me a line at sethjenny@adelphia.net or seth.edmondson@gmail.com as I am not watching TV this week and have plenty of free time!
Seth
# posted by Seth Edmondson @ 8:15 AM 
Comments:
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Seth,
It was nice to talk to you today. I really enjoy reading your updates. Not only are you keeping me informed about your status but about gas prices, I actually like that!
I suggested we also turn off the tv this week but Mitchell isn't going for it. He was impressed that you are but isn't ready to commit, I can't say I am surprised, he really loves sports.
Here is a site for you, www.sweepstakestoday.com, you can find great contests to enter (in case you want to take a break from research and need something else to look at on the web while not watching tv)
Be well,
Natalie
It was nice to talk to you today. I really enjoy reading your updates. Not only are you keeping me informed about your status but about gas prices, I actually like that!
I suggested we also turn off the tv this week but Mitchell isn't going for it. He was impressed that you are but isn't ready to commit, I can't say I am surprised, he really loves sports.
Here is a site for you, www.sweepstakestoday.com, you can find great contests to enter (in case you want to take a break from research and need something else to look at on the web while not watching tv)
Be well,
Natalie
# posted by 
: 6:24 PM
: 6:24 PM
Hi, I ran across your blog searching for LMS blogs. I also have a blog about my Leiomyosarcoma at squiredave.blogspot.com You didn't specify which group you joined, ACOR or YAHOO LMS. See my Feb 05 entry for more links to LMS. I suggest you join both the ACOR and YAHOO groups. Dave S. from Iowa
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